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Hello all - I haven't been around a lot because of some things going on with the family. That being said - I know the DV prayer warriors will do what they do best for my family. First - my 18 YO daughter has Ehlers-Danlos Syndrome. This can raise some nasty complications - and unfortunately she has a number of them. It has wrecked havoc with her autonomic nervous system and created some serious conditions. I am taking her to the hospital on Friday to have a feeding tube emplaced because she can no longer eat solid food without throwing up. Even things such as milk or ice cream have about a 50/50 chance of staying down. This procedure is being done in a city 170 miles from here because none of the GI specialists in this town will do it because she is only 18. We have to go to a pediatric GI specialist because she is under 21. Her current Drs. have referred her to the Mayo Clinic, and we have an appoint the first week of March. Please pray for her as we travel through this. Secondly - my wife has slowly gotten worse. Her back has been slowly degenerating over the last few years, and she is now to the point she can only stand for a about 5 minutes, walk maybe 100 yds, and can't sit in a standard chair. The only way she is fairly comfortable is in her recliner with pillows under her knees. She is actually on pain management (pain patch 24/7 and pills every 4-6 hours), and is still in a level of pain every day. She doesn't really complain about that - what she does complain about is not being able to help me around the house, going outside for walks and doing her photography. She's really a pretty strong woman. We recently switched Dr. for her - getting away from our town, which has a reputation for Drs. doing only what they need to do to get by...very few will take the extra step. We are now seeing a Dr. in a city 90 miles away. The first thing he did was order a full spine MRI - prior to this it has only been her lumbar and thoracic. What they have found is she has Tarlov cysts, spinal stenosis and empty sella syndrome. What this boils down to for her is pain, muscle weakness, muscle spasms, sciatica, depression, anxiety and messed up hormones. We are going to see a neurosurgeon tomorrow to see what our options are. Please pray that this man is given inspiration and guidance to find an answer to her conditions. Thanks in advance...may God bless all of you also.
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